Endometriosis Centres Subcommittee

Endometriosis Centres Subcommittee

The Endometriosis Centres project continues to grow and gain respect. In 2018, the BSGE Endometriosis Centres Scientific Advisory Group published ground-breaking research in BMJ Open. Laparoscopic excision of deep rectovaginal endometriosis in BSGE endometriosis centres: a multicentre prospective cohort study, wasthe largest study of its kind in the world. Using data from the Endometriosis Centres, the study looked at nearly 5000 patients who had surgery for severe endometriosis, performed by more than 100 different surgeons in 51 different hospitals. Dominic Byrne, past BSGE President, said:

“The BSGE has worked for over a decade to establish and accredit a network of specialist Endometriosis Centres, so patients with severe endometriosis can have access to specialist laparoscopic surgery. This paper is the culmination of this enormous effort and reports the outcome of nearly 5,000 patients. It is a landmark moment.”

Emma Cox, Chief Executive of Endometriosis UK welcomed the research saying it

Clearly shows the necessity and positive effects of laparoscopic excisional surgery for women with rectovaginal endometriosis. This is proof that – done by experts in specialist centres – surgery can reduce pain and severe symptoms, enabling women to stay in work as well as improving their quality of life.’

NICE published a guideline on endometriosis in 2017. BSGE Endometriosis Centres were recognised within this. They are seen as an opportunity to deliver a specialist service nationally which should prove to be beneficial to patients and more cost effective.

Future challenges

In the future, one of the challenges will be to decide how far or how wide the scope of the Endometriosis Centres should be. There has been a great deal of international interest in developing centres. We need to understand how broad we can make the project and continue to ensure that centres are appropriately accredited.

Following successful publication, we look forward to continuing to use the database as a source of information and research output. However, data protection is a further challenge for the portfolio, accordingly we have made a decision to make all patient data anonymous.

Exemplar Videos

Exemplar videos were introduced in 2016 and have now been embedded in accreditation. The accreditation process is evolving and a minimum of 10 hours per week became mandatory for centre accreditation in 2018. Exemplar videos need to be completed by the end of December and will be assessed in January 2019.

I look forward to updating you on the progress of the Centres both on the website and in a future edition of The Scope, please get in touch if you have any comments or suggestions for the portfolio.

Meet The Portfolio Members

Angus Thomson

Angus Thomson

Chair of Endometriosis Centres

Having been a consultant since 2005 in a busy DGH, I have always been passionate about advancing MAS surgery within gynaecology. The BSGE Worcestershire Endometriosis Centre is amongst the busiest in the country, striving to improve care. My other special interest is laparoscopic urogynaecology in our BSUG accredited Urogynaecology unit.

Since training in the North West of England and my fellowship in Australia in 2003-5, I have retained a keen interest in laparoscopic training and still assist with local, national and international courses. We have an advanced SITM trainee and have made laparoscopic surgery the default surgical route for gynaecology in our unit. We are constantly trying to improve the quality of care provided, optimising minimal access approaches to surgery, reducing length of stay and incorporating a multidisciplinary approach to care and service improvement. My previous experience as Clinical Director and Divisional Director has given me a broad understanding of the NHS and the challenges we face in training, governance, finance and specialist commissioning. I am now the Deputy Medical Director for our local NHS (Herefordshire & Worcestershire ICB) providing leadership for elective, cancer and diagnostic services.

As Chair of the Endometriosis Centres Committee for the BSGE we are striving for improvements in care for women with Endometriosis. We are keen to develop Endometriosis networks with Endometriosis Centres and Units to deliver complex care and improving diagnostic and referral pathways for all women suffering with this condition.

Karim Abdallah

Karim Abdallah

Endometriosis Centres & Scientific Advisory Group Subcommittee member

Consultant Gynaecologist

Sheffield Teaching Hospitals NHS Foundation Trust

Jane Allen

Jane Allen

Endometriosis Centres & Scientific Advisory Group Subcommittee member

Consultant Gynaecologist

Hull Endometriosis Centre

Hope Blandford

Hope Blandford

Endometriosis Centres & Scientific Advisory Group Subcommittee member

Gynaecology and Endometriosis Advanced Nurse Practitioner

McNair Centre, Guys Hospital

Dipankar (Ron) Chowdhury

Dipankar (Ron) Chowdhury

Endometriosis Centres & Scientific Advisory Group Subcommittee member

Senior Clinical Fellow, Endometriosis and Minimal Access Surgery

Cambridge University Hospitals NHS Foundation Trust

Kirsty Munro

Kirsty Munro

Endometriosis Centres & Scientific Advisory Group Subcommittee member

Consultant Gynaecologist & Endometriosis lead

Royal Infirmary of Edinburgh

Oliver O’Donovan

Oliver O’Donovan

Diagnostics and Endometriosis Centres & Scientific Advisory Group Subcommittee member

Consultant Gynaecologist and Endometriosis Lead

University Hospitals Bristol and Weston

Neelam Potdar

Neelam Potdar

Endometriosis Centres & Scientific Advisory Group Subcommittee member

Consultant Gynaecologist & Subspecialist Reproductive Medicine; Honorary Associate Professor

University Hospitals of Leicester NHS Trust, Leicester

Sarah Rizeq

Sarah Rizeq

Endometriosis Centres & Scientific Advisory Group and Website & Digital Governance Subcommittee member

Senior Clinical Fellow and ST6 Trainee in Obstetrics & gynaecology

Centre for Endometriosis and Minimally Invasive Gynaecology (CEMIG), Ashford & St.Peter’s NHS Foundation Trust

 

 

Lucky Saraswat

Lucky Saraswat

Endometriosis Centres & Scientific Advisory Group Subcommittee member

Consultant Gynaecologist and Endometriosis specialist

Aberdeen Royal Infirmary