Patient representatives at BSGE ASM
Representatives from Endometriosis UK joined consultants, trainees and nurse specialists at the BSGE Annual Scientific Meeting in Cornwall.
Carol Pearson, patient lead for Endo UK talked to members about empowering women and Rachel Jackson was part of a patient panel, relating individual experiences of endometriosis and ensuring that the patient’s voice is heard.
“ The BSGE are innovative. Here we are talking about the best of the best. Unfortunately too many women are still seeing medical staff who aren’t aware about endometriosis, we want to spread the word so that there is increased referral to specialist centres.
Too many doctors believe there is no point in diagnosing endometriosis because they feel that nothing can be done. But women deserve to get the right diagnosis so that they can make informed choices about their future life and treatment, based on the facts.”
Both Carol and Rachel were positive about the BSGE’s Accredited Endocentre scheme, saying it was really helpful for signposting specialist centres but also observed that it highlighted areas where there are gaps, such as the presence of only one Endocentre in the whole of Wales. They looked forward to the centres progressing even further to provide women with consistent and quality care.